BEINEINU NEWS & NOTES
April 17, 2015
INTERNATIONAL
Beineinu is a volunteer based 501c3 non-profit organization which is run mainly out-of-pocket by our volunteer staff. The donations that we receive go directly to help families and to cover our minor operating expenses such as necessary filings, printing costs, etc.
We have established a fund to help families with expenses related to their child’s disability. You can have a share in our Mitzvah by donating to Beineinu. In fact, you can specify what you would like your donation to go for, such as medical expenses, equipment, camp, adapted toys, Beineinu operating expenses, etc.
There are many ways that you can help:
- Donate by mail to 48 West Maple Avenue, Monsey NY 10952
- Donate by credit card by clicking on the “DONATE” button on the bottom of the Beineinu website’s Home page
- Donate Jet Blue points through the True Giving page on their website.
Tax deductable receipts are provided on request for donations.
USA
Road To Prevention IBD Study---The Doctors at Mount Sinai Hospital have successfully acquired new information telling us that the bacteria that lives inside our gut may be another important factor involved in causing IBD.
The studies suggest that there are certain types of bacteria that are protective against IBD and some that are playing a role in causing it. They believe that these harmful bacterias are present before the inflammation even occurs in the intestine. They want to study the genetics and bacteria (gut flora) of people who are affected and unaffected by IBD within the same family (multiplex families).
For this study, they will need to collect a small amount of blood, saliva, and stool from all family members including those with and without IBD. To participate in this study, contact 845-670-4522.
Food Allergy Study---Jaffe Food Allergy Institute of Icahn School of Medicine at Mount Sinai is conducting an immunotherapy study of Baked Egg vs. Egg Oral Immunotherapy. They are looking for children aged 3 and 16, who have an IgE over 5, who are not currently be eating baked egg. This study will be closing for enrollment June 30, 2015. If you are interested in enrolling your child in this study, please reply to
Attention Advertisers—Down Syndrome Amongst Us magazine will be publishing their next issue in May. They have begun a policy of accepting advertisements that feature individuals with Down Syndrome or other visible disabilities. If you are interested in joining this marketing trend, contact Sarah Sander at
ISRAEL
Group Parent Coaching for ADD/ADHD---Kesher Jerusalem is featuring group coaching which will allow every parent to work on a personal goal related to your child's ADD/ADHD difficulties as well as to offer and receive from the other group members in an atmosphere of acceptance, trust and security. There will be10 sessions on Tuesdays, 7:30-10 pm at KESHER Jerusalem, 4 Yad Haruzim Street, Talpiot, Jerusalem. First session on April 28, 2015. Contact Daliah Mandler 054-6312558
Kessem Shel Kelev---Kesher will be featuring a workshop for "special" families that own a dog at KESHER Jerusalem. How can you help your special child develop, empower him and his siblings through the relationship with the dog? How can you train the dog to become a part of the family and not an additional burden? We will learn to:
- Empower the child with special needs and his siblings by training th dog to respond to various instructions and shared play. We will teach the dog: sit, down, play ball, jump over hoops and more…
- Train the dog so that you and your child will enjoy living with it as part of the family.
The workshop is for: Special families with children ages 6-12 who can understand basic instructions and cooperate (appropriate also for children with physical disabilities), who own an immunized and well cared for dog. 10 sessions, once a week on Tuesdays 5-6 PM at Dania Park. First session on April 28, 2015. Contact Ofri – 052-6999455