We are an international, non-profit organization, run by parents of children with special needs. Many of us have gathered reams of crucial information and gained valuable experience in the how-tos of living with a child with special needs. Our goal is to pool our resources in order to help other parents in similar situations.
First and foremost, we connect parents raising children with similar diagnoses. Syndrome, condition, disease, or disability – all you need to do is contact us and provide basic information, and we will try to match you with a parent volunteer dealing with a similar condition. Beineinu will provide you with convenient contact information. All you need to do is call or email, and you can use a pseudonym. All personal information is stricly confidential and accesible only to the administrator.
Many parents grapple with a condition/disease that is rare, and find that information is hard to come by. At Beineinu, we have student volunteers who perform internet research for people with little or no internet access and those who cannot do the research on their own. Our volunteers present the information in a clear and organized fashion. In cases where useful information can only be found in English (as is too often the case), Beineinu volunteers will translate that information into Hebrew. If you need information translated into any other language, please ask us, and we will try to arrange that for you.
Another exciting project is our online information-sharing feature. In addition to one-on-one contact, parents can share information with all Beinienu members at once! There will be lists of doctors and clinics, methods of treatment, equipment, organizations, funding resources, and more – you can post your experiences and add comments to suggestions made by others, and you can access the posts of other Beineinu members. There is no more powerful tool than being able to access useful information and countless helpful tips gathered from parents like you.
Beineinu was founded by parents like you, who have found that connecting with other parents in the same situation was a turning pointing their ability to cope succesfully with the challenges before them. The idea was simple: first create a list of parents who are willing to share their experiences with other parents, and second begin providing a small, home-based service people can call to request to speak with others in the same situation. By the end of the first month, our list included hundreds of volunteer parents who were thrilled with the idea and happy to participate. In addition, we began receiving calls from parents who wished to be put in contact with others. Thus began "Beineinu".
Very quickly, Beineinu developed into a group of dedicated volunteers working to develop further services and to bring our plans to fruition. With G-d's help, Beineinu is now a full-fledged organization, far surpassing our original dreams which has merited to help many thankful parents. We are happy for every parent who feels they have gained much-needed support through Beineinu. We have many more plans for the future, as this organization slowly but surely evolves into an international parent association.
There are many ways you can help Beineinu continue in its sacred work. Every parent of a child with special needs has that special urge to assist others and make it easier for them to walk along this unfamiliar path, but time and resources may be limited. At Beineinu, everyone can find the best options through which they, too, can help.
Agree to allow other, "new" parents, to contact you through Beineinu. You may specify times and method of contact that fit into your busy schedule.
Our surveys are our means of collecting important information about doctors, organizations, and equipment, etc., that you have used so that we can include that in our online database.
Help us with our online research, data entry, translating, and preparing information about conditions in a clear and easy-to-understand fashion following the guidelines we will provide.
Since we are a volunteer organization, Beineinu's expenses are relatively minor. We have no outside funding and rely heavily on people's generosity in order to be able to continue our work. A few hundred dollars can translate into new printing material to let more parents know about and benefit from Beineinu; your donation can help provide reassuring care packages for new mothers who have just received a diagnosis; it can help us add more helpful features on the site that can then help thousands of parents like of us. Since all funds go to cover our actual printing, mailing, and website expenses, a donation of any amount really makes a true difference.
Any other ideas? Tell us how YOU can help!
Golda P. Turner Deena Weinberg
U.S. Office Israel Office