Rett Syndrome - Websites and Organizations

 

 

IRSF - International Rett Syndrome Foundation

www.rettsyndrome.org

Elements of Mission (from their website):

RESEARCH: The IRSF will coordinate, cultivate, accelerate, and fund research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort.

FAMILY SUPPORT: The IRSF will assist families of individuals living with Rett syndrome by providing them with connections to critical and useful information, programs, services, and support from diagnosis to day-to-day life.

ADVOCACY & AWARENESS: The IRSF will advocate for and raise awareness about individuals with Rett syndrome so the scientific and medical community, policy makers, educators, care givers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals dealing with Rett syndrome on a daily basis.

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Rett Israel

http://www.rettisrael.org/84636/English

Sigal Hertz-Tirosh
03-7412575
054-5396388 
This email address is being protected from spambots. You need JavaScript enabled to view it.