SCLERODERMA ORGANIZATIONS
Scleroderma Foundation
800-722-4673, 978-463-5843
12 Kent Way
Suite 101
Byfield, MA 01922
On their website, you can find useful information under "Education/Resources", and support groups and online forums under "Chapters/Support Groups.
Scleroderma Research Foundation
On their website, you can find information and answers to frequently asked questions about scleroderma and tips for self-management.
National Institute of Arthritis and Musculoskeletal and Skin Diseases
www.niams.nih.gov/health_info/scleroderma/default.asp
NIAMS provides a comprehensive page on the symptoms and treatments of scleroderma.
International Scleroderma Network
This organization moderates online forums for people with scleroderma and provides information on the condition.
MORE RESOURCES:
Hospital For Special Surgery Scleroderman Center
www.hss.edu/scleroderma-vasculitis-center-programs.asp
This page has links to in-depth articles on scleroderma.
John Hopkins Scleroderma Center
www.hopkinsscleroderma.org/patients
Click the links on this page for information on scleroderma. The link "Living With Scleroderma" is particularly helpful.