Microcephaly Organizations
Foundation For Children With Microcephaly
877-476-5503
An organization providing information and support for families dealing with microcephaly and related disorders such as polymicrogyria and lissencephaly and so many more. They assist families in acquiring the services, supplies, and equipment they need, and connect parents dealing with similar issues. Their social media support group located at www.facebook.com/groups/microcephaly has over 2,000 members.
Microcephaly Support Group
Pinner, HA5 9DR United Kingdom
Tel 1638552689
An international organization based in the United Kingdom dedicated to providing information, support, and networking opportunities to families of children with microcephaly. They has over 400 members nationwide as well as contact with many affected families overseas. They provide information and support to affected families; promote and support research; and provide networking opportunities that enable families to exchange mutual support, information, and resources. The group also has a sibling pen pal club and provides a variety of educational materials including an information sheet and a regular newsletter.