ALSTROM SYNDROME ORGANIZATIONS
Alström Syndrome International
8003713628
14 Whitney Farm Road
Mount Desert, ME 04660
The Alström Syndrome International (ASI) is a non-profit organization for individuals with Alström syndrome, their families and friends, healthcare professionals, researchers, and all individuals whose lives have been touched by this rare disorder.. Alström Syndrome International was established by six affected families in 1995 (as the Society for Alström Syndrome Families, SASF) and currently consists of approximately 200 members. ASI's mission is "to provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström syndrome." The organization is committed to providing information, support, resources, and networking opportunities to affected individuals and family members; and promoting and encouraging genetic and clinical research with the ultimate hope of developing a therapy for Alstrom syndrome and related disorders.