NEUROFIBROMATOSIS ORGANIZATIONS

The Children’s Tumor Foundation

Tel:   800-323-7938,      212-344-6633

Fax:  212-747-0004

95 Pine St

16th floor

New York, NY 10005

www.ctf.org 

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  • Helping patients and families affected by NF1, NF2 and Schwannomatosis
  • Sponsors scientific research aimed at finding the causes and cures for neurofibromatosis, promotes the development of clinical activities, works to create public awareness and provides patient support services
  • A member of the International Neurofibromatosis Association
  • Website has listing of multidisciplinary NF clinics across the US
  • Publishes newsletter “Neurofibromatosis News” 4 times a year

National Neurofibromatosis Foundation

800-323-7938

Neurofibromatosis Inc

800-942-6825,    301-918-4600

9320 Annapolis Rd

Suite 300

Lanham, MD 20706-3123

www.nfinc.org
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